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  sites of interest
  @essential tremor.org:  links:  Sites of Interest
The links on this page will take you to additional sources of information, including online pharmacies.

Help Raise Funds for the IETF
  CauseLink



www.Drugstore.com
Receive special discounts and offers on merchandise each month. As an affiliate, for every dollar you spend, IETF receives a portion of the money as a charitable contribution.

www.expressgroup.co.nz
Discount drugstore.

www.stamps.com
For all your postal needs. As an affiliate, for every dollar you spend, IETF receives a portion of the money as a charitable contribution.

www.Hertz.com
As an affiliate, for every dollar you spend with Hertz car rental, IETF receives a portion of the money as a charitable contribution.

www.globalrx.com
International pharmacy providing USA approved medications worldwide.

www.amazon.com

In Association with Amazon.com For every dollar you spend on purchases at Amazon.com, when you click on the link here, the IETF receives a portion of the money as a charitable contribution.

Charitable Donation Library on the Net:
Raising funds and awareness for ET through charitable contribution sites. Please visit and make a pledge on behalf of yourself, a friend or a family member.
www.createhope.org
www.webcharity.com
www.charityamerica.com
www.essentialtremor.org


Surgical Procedures
  www.elekta.com
Gamma knife surgery

www.medtronic.com/neuro/tremor
Activa Tremor Control Therapy

Other Support Groups
  http://www.egroups.com/group/etchildren
Or E-mail to tremor@yahoogroups.com or slw36@yahoo.com
Parents of children with ET

http://groups.yahoo.com/group/tremor
Or E-mail to ETchildren@yahoogroups.com
ET Internet support group

http://www.egroups.com/community/activa
Or E-mail to activa@yahoogroups.com or JRyan@pitnet.com
Activa therapy patient support group

Other Neurology Sites
  www.parkinson.org
National Parkinson Foundation, Inc..

www.wemove.org
The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activites on the Web.

www.neurologychannel.com
The internet's most comprehensive resource for neurology-related consumer healthcare.

www.healthlink.mcw.edu
Information in neurological disorders from physicians of the Medical College of Wisconsin.

www.sfn.org
Society for Neuroscience

www.dana.org
Charles A. Dana Foundation - Dana Alliance for Brain Initiatives

General Healthcare Information Links
  www.medicalbooks.com
Largest medical, technical and scientific online bookstore. They have more than 90,000 titles of books, multimedia and databases in stock.

www.familycareamerica.com
Check out this really excellent site.

www.PatientTravel.org
No-cost, long-distance medical air travel is available from the national Patient Travel Helpline. Phone: 1-800-296-1217.

www.drkoop.com
Empowering consumers to better manage their personal health with comprehensive, trusted information.

www.medinex.com
The goal of Medinex.com is to provide the safest health search for medical information available on the Internet. By partnering with disease-specific organizations that are the experts in their field, Medinex.com becomes the sage medical portal for hospitals, physicians and their patients.

www.bcia.org
For some individuals, stress can temporarily cause an increase in tremor symptoms. Some individuals with tremo have found that biofeedback has helped in the reduction of stress. For a biofeedback specialist near you, visit aapb.org and search by area. It is advisable that you call the office to find out if the biofeedback specialist has experience treating patients with tremor before you schedule your appointment.

www.webmd.com

www.alyshia.com/opca
Information on the condition known as OPCA - Olivopontocerebellar Atrophy

www.orthostatictremor.org
One individual diagnosed with orthostatic tremor provides personal experience and information

www.hcfa.gov
Medicare and Medicaid information

www.geneticalliance.org
Genetic Alliance

www.familiesusa.org
Families USA

www.hhs.gov
Medical Records Privacy Act

www.medicaljourneys.com
Health History Form

www.nfcacares.org
National Family Caregivers Association

www.nhgri.nih.gov
National Human Genome Research Institute's Online Genetic Glossary

www.igm.nim.nih.gov
National Library of Medicine

www.selfhelpnetwork.wichita.edu
Center for Community Support and Research, Self-Help Network of Kansas

www.hopelink.com
Clinical trial flight service for patients

www.angelflightamerica.org
Charitable medical air transportation services

Disability Information
  www.disabilityresources.org
Disability Resources, Inc. is a national, nonprofit organization, based on Long Island, New York, which has provided information about resources for independent living since the inception of its award-winning print newsletter, Disability Resources Monthly, in 1993.

www.ncmedical.com
Functional Solutions - Weighted utensils. Can also be reached at: NCM Consumer Products Division / San Jose, CA / 1-800-235-7054

www.ed.gov/offices/OSERS/NIDRR
National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: (202) 205-8134
TTY: (202) 205-9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment and independent living of disabled individuals of all ages.

www.naric.com
The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
Phone: (800) 346-2742 or (301) 562-2400
TTD: (301) 495-5626
Fax: (301) 562-2401
NARIC is one of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the internet. NARIC's literature collection, which also includes commercially published books, journal articles and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.

www.invisibledisabilites.com


Research Information
  www.clinicaltrials.gov
ClinicalTrials.gov provides patients, family members and members of the public easy and free information on clinical studies for a wide range of diseases and conditions.

www.ninds.nih.gov
This site provides access to the most recent biomedical research publications concerning human subjects.